Yesterday actually marked the beginning of MS awareness week.
In honor of MS week - and perhaps longer - I've changed the background of my page to MS Society Orange.
20100308
20100307
Be aware people
Quackwatch - Be wary of multiple sclerosis cures: http://www.quackwatch.org/01QuackeryRelatedTopics/ms.html
20100302
Cold : (
Man I'm suffering my first real cold in a few years - since starting the Avonex (which is an anti-viral marketed to MS sufferers). Shelby and my MIL went to the urgent care clinic from a cold we all caught, all I got was a runny nose. Avonex was a godsend - in a way. It was a weekly self-injectable (thank you wife for making it spouse-injectable, as I couldn't handle giving myself an injection). Unfortunately, it wasn't giving me the results my neurologist had hoped, so he put me on Tysabri. Tysabri rocks out with its **** out, as I no longer had any enhancing legions in my brain or flu-like side effects, but I no longer had the cold protection that Avonex provided.
So here I am today - four days after my cold started (started Feb. 27) - reminiscing of the joy that Avonex brought me with my nose runny as hell, ears as stuffed as can be, and labored breathing. Tis a trade-off though, I'd rather deal with a cold once in a while than have to deal with weekly injections that make you feel like you have the flu for a couple days.
So here I am today - four days after my cold started (started Feb. 27) - reminiscing of the joy that Avonex brought me with my nose runny as hell, ears as stuffed as can be, and labored breathing. Tis a trade-off though, I'd rather deal with a cold once in a while than have to deal with weekly injections that make you feel like you have the flu for a couple days.
20100221
Hello
Hello to the ladies of leidig, who my aunt (who also works there- HI!) tells me that they are consistently checking my MS Blog.
Sorry I don't update this blog more often. As much as I hate to disappoint everyone, it is much better that I don't have any additional symptoms/problems to report.
As long as the Tysabri keeps working, hopefully all I will really have to keep talking about is needle sticks (I hate needles).
Hope all is well for everyone up there in the Prudential Building!
And remember, MS sucks - and I'm not wholly talking about Multiple Sclerosis! ; )
Sorry I don't update this blog more often. As much as I hate to disappoint everyone, it is much better that I don't have any additional symptoms/problems to report.
As long as the Tysabri keeps working, hopefully all I will really have to keep talking about is needle sticks (I hate needles).
Hope all is well for everyone up there in the Prudential Building!
And remember, MS sucks - and I'm not wholly talking about Multiple Sclerosis! ; )
20100218
20100215
bummer
I've got another infusion coming up on Thurs. I realized this Saturday, which is less than a week. I guess I'm getting more used to it. Still a bummer though : (
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