Why is tysabri so scary?

PML and the withdrawl are just the surface.

Here is a partial list from MS-UK

Yes, it is working that well for me.


I'm glad...for now

That I haven't left the tysabri which has treated me so well, but does carry a PML risk. What with all these (two) fingolimod patients turning up with PML.


I subscribe

To the school of thought that you need to bring you fight to your enemy. Then I saw this quote on shift.ms,

"Keep fighting your MS with strong therapy- the MS will be ‘fighting’ your brain everyday- whether you chose to treat it or not…"

So very true. And that's why I'm on the tysabri, which I can never get off, as I am scared to death of the so-called 'rebound relapse'. I don't want to go up on the EDSS.


Good News Everyone!

MS research is getting some major corporate backing. (Spoiler: El Goog!)

So every time I do a web search of check my email, I'm supporting an end to MS?


“We used to see patients at the beginning stages of MS -- two women would come in with optic neuritis, they couldn’t see out of one eye, they’d have some spots on the MRI scan, and they looked very similar,” said Rudick, who previously was director of the Cleveland Clinic’s MS program. “But as we followed them along, 10 years later, one would be a championship tennis player still and one would be in a nursing home. I never understood that.”

Ya'll Some Tasteless Idiots

Watching the bachelor to raise money for your 'charitable' organization.

So what'll be next? A WWF...errr...WWE viewing party?

Dumb drivel watching automatons.

You mind becomes free shortly (or a while longer) after an MS diagnosis. Having that and then giving it up is so very ignorant.


He who laughs last

Video games ARE good for me. Bite it 1980s mentality!


FDA's communication for the pill

No. Not that pill, the MS pill.

Making it official. Tecfidera carries with it a risk of PML.

I am glad at this point that I did not switch of Tysabri. Though, I think it's every eight week dosing is lessening it protection to the point that I am getting very gradually worse. I notice that my leg pain has been increasing as of late. Hopefully it's a perception thing. I talk to my neuro in June about it, and perhaps I need to be switched to every six weeks? At least if the effects are reduced, I should be receiving immune system protection from the cause of PML, the JC virus. Of course, I came to this conclusion the evening after my six-month neurologist appointment. Sometimes I'm just so stupid!