I had a neurologist appointment today

And I was told that I had tested positive for the JC virus antibodies. This effectively doubles my chance of developing PML. That is bad news. 1/1000 to 1/500 (I believe that my neurologist, based on my history, put me at about 1/600). Still not good odds. 1/1000 is bad!

My neurologist offered to put me on gilenia (fingolimod), but since its a brand new drug, I'll let the people who need it most be the guinea pigs. I could always go back to an ABC, but those suck.

Luckily The way that PML is detected is via MR. I'll talk to him next time about moving MRIs up to every six months.

If you're interested, I found out via the Stratify study

No comments:

Post a Comment

SPAM is strictly prohibited and will be removed!