20121027

Neuro Appt

Another neurologist appointment, and everything is fantastic news. My treatment, Tysabri, is doing its job perfectly. My MRI looks stable. I've only had one major episode, from which the effects mostly wained. The other major episode, a bout of optic neuritis, was alarming but went away after a bit of time and StErOiDs (I wish those on nobody).

I'm as lucky as I am unfortunate. I have Multiple Sclerosis, which sucks balls, but it has barely affected my life. The convenience of modern designer drugs, no? And major health insurance! Thanks to my parents for imparting that bit of wisdom. And my loving wife for providing it!

But it still looms over my head. Its not as in-your-face as when the weekly shots in the leg were administered by my loving wife. But, as I said, it still looms. That the next day I wake up my life could be significantly changed for the worse.

I try not to worry about such things, but it is damn near impossible when you've got an at-least monthly intravenous infusion reminder of what is being controlled in my body. If it isn't damn near everyday (or truthfully bedtime, when the mind has time to wander) that I have to face the reality with which I may be presented. I'm worried that Everyday may be my last. Not that I am worried about dying - I am, who isn't, but off-topic - I'm worried about having to face a life worse than death. Me - who I am - would be mostly gone. And again, I have to tell myself, "just try not to worry about it."

Here is to modern science people! And luck. A little luck never hurt anybody, right?

SIDE NOTE: I've learned the (layman's) secret to Tysabri (Natilizumab) - it basically tells your immune system to not enter the brain. Which my loving wife followed up with later, and it makes damn good sense, why PML risk is increased: because your immune system is kicked out of your brain.

C'mon BBB!


A Personal Victory

If i may brag a bit about a goal I finally bested. It may seem trivial to you, but to me it's a major milestone: I weighed in under 250 lbs!

20121017

another infusion down

another easy infusion. Single stick. Early seating. Excellent service. Well Played AIC.

20121014

Your husband is going to lose

the race for the president, and you're off petting horses.

I can guarantee one thing. Petting horses isn't a FDA approved therapy.

And Mormonism isn't a proper religion. It's a cult...even though Billy Gahram would now disagree.

It's reassuring

To see every article coming across on a google alert for 'Tysbri' (the drug I take for my MS) to be a result of some financial institution on the success of the financial performance of Tysabri. Here are the top three:

(1.) (2.) (3.)

I'm here to tell you it's working fine, and my insurance gets billed ~$7500/28 days.

I'm glad all you sick f***ers are getting rich off the solution to my problem.

And we wonder why there will never be a cure?

20121009

Listen, CCSVI is not for me.

I've posted before about CCSVI and how I would have to see a lot of SCIENTIFIC EVIDENCE to prove it is effective.

So far the evidence does not back it up like I would need to see to allow someone to go rooting around major vessels IN MY BRAIN (yes, technically in the neck, but close enough).

What? You spent a bunch of money on a lab to provide CCSVI. Why didn't you wait for the science to come in? Dumb dumb dumb!

Moreover, I don't need you idiots spamming my blog about MY MS because you made a poor decision in this life and now need more ignorant customers to allow you to root around major brain vessels.

No matter how much you SPAM me, I am not getting it done at your clinic. If the science comes in proving it the most effective cure for MS, I will compline a list of those who spammed me and publish it so that MSers know that they should not patronize those fly-by-night clinics who SPAM.

People with MS are generally intelligent people and won't fall for your BS.

Plus, I am either a 0 or .5 on the EDSS. So there is absolutely NO NEED FOR ME TO HAVE MY BRAIN (Neck) VEINS CLEARED.