20140428

Of All The Things MS Takes

It certainly does give one perspective.

"Nobody in my family had MS, nobody I know," said Harold, who has three older siblings. "It was a game changer in life. I'd been through a few things. I'm 43 years old. This was a major one. I began to appreciate my time here on this planet earth in ways I didn't think I would appreciate."


Well that sounds vaguely familiar...excepting the 43-year-old and older siblings part. "It was a major game changer in life"...nail on the head. "I'd been through a few things...This was a major one." Check. "I began to appreciate my time here on this planet earth in ways I didn't think I would appreciate." And there is the perspective of which I spoke. That is the one thing MS has given me, and probably many other MS suffers, I'm sure.

Are you asking, "WTF is Lemtrada AKA Campath?" Me too. Here's the wikipedia. It's Alemtuzumab...sounds a lot like Natilizumab (tysabri). I wonder if it will kill people in the same way?

"Here's the kicker," Harold (patient from above quote) said. "Within three weeks of the first dose, I felt great. I felt I had a new connection with life in a way I haven't felt since I was a kid. I felt like a baby growing up again. I guess MS was affecting me for a long time and I didn't know."

The emphasis is mine. Not that I'm terribly afflicted - BUT - I wish I had that feeling. I hope I'll find that feeling. I just want to run again.

Most importantly is this statement,

"It's been a life changer," said Harold. "I want the FDA to approve it as an option for people."

And FTA, "Lemtrada has been approved in Canada, Mexico, Europe and Brazil, but not the U.S."


20140407

Well That's Reassuring

Scientists think they've found out how the MS drug tecfidera (Dimethyl Fumerate [DMF]) works.

Clue: Genetic Failure! I don't have the gene for HCA2 - or at least I assume based on the linked article.

20140401

Bad Odds

When I read such information, I am happy to be getting off Tysabri.

Should be my second-to-last infusion on the two month schedule.