20150829

Why?

I certainly hate being lumped in with the cancer patients for my infusion. I don't hate the cancer patients. I feel bad for them. At least they have hope of 'beating' their cancer. Alas, at this time, there is no known cure for MS. Which means I wouldn't have a cure for at least 10+ years. I prefer the medication be on the market for a long time. I'm already enough of a guinea pig with the Tysabri; it's working so very well though.

Anyways, back to being lumped in with the cancer patients.

It kind of sucks. The despair you can feel coming out of some of the infusion rooms. Death lingering in the hallways (but that could just be the whole hospital). On the plus side, the AIC staff probably think, "Oh good, we've got the MS guy who isn't looking bad at all* to treat for the next two-and-a-half hours." All why sitting there knowing I am DX:340. I know that it won't (shouldn't at least) kill me quick as a cancer. For that I am thankful. I am thankful there is a medication to halt/slow MS progression that is working (although in itself can maim/kill me). I am thankful that I have remained Relapse Remitting (RRMS). I am, OTOH, not thankful for: having invisible conditions, decreased mental and physical capacities no matter how slight. Needles, I freaking hate needles - bad disease to have if you hate needles. Dealing with people, I'm one of those just leave-me-alone guys. Having to deal with doctors, nurses, and even other patients just doesn't go along with me. But one endures. That is all I now know. You must proceed forward, no matter the outcome.


*And that's why they call it an invisible disease until you're fadged up. And I think the AIC staff knows better. And you see how all over the place this post was. My new reality.

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