20140829

HOPE

Hope that my memory can be fixed with a zap of electromagnetism. Although the article did say healthy people, which since 2007 I can no longer consider myself.

20140818

Kenzie Kindergarten

We sent Kenzie off the Kindergarten today. I posted about it on my Mj site.

20140811

Marching on...very slowly.

On Friday, the Illinois department of public health publicized it's application for medicinal cannabis ID cards for qualifying patients. (Links to a PDF form)

I'd like to point out

Shortly after diagnosis I asked my neuro if acquiring HIV would stop MS. Theoretically, of course.

Now this comes across the wire.

20140620

Oh, and...

My recent neurologist appointment marks five years on Tysabri. Keep that ball rolling, it's been treating me so very well.

20140616

Deep contemplation

So it is after my six months of some serious soul searching, worry, and uncertainty I decided I was going to ask my doctor about staying on tysabri every eight weeks. Well, I had appointment with him today, and he said that some people who's MS was 'hot' did not fare well when they switched to tecfidera. He also noted that the rebound relapse for people of that type was especially rough.

This means I'm going to keep rolling the dice and stick it out with tysabri. It has been working for me so wonderfully well that I hate to have to switch from it. It's also hopeful when you also hear that there have been no PML reports (yet) in patients taking tysabri on an eight week schedule. Hopeful, but no guarntee. What really sold me was the risk put in comparison. The risk from PML comes down to ~1-in-200. The risk from stroke is 1-in-20 and the risk from cancer is 1-in-6. Doesn't seem so bad after all. Except those are life enders (for the most part), where as PML is life-as-you-knew it-the-day-before is over..if not just over.