Another Infusion Down

Got my infusion on Wednesday of this week.

It was great, one stick in the forearm and everything else was cake. Except when they removed the IV. I felt that a little more than usual. But I'll take the removal being worse over multiple sticks any day.

And now I am good until February of 2016. This low maintenance dosage of every two months is really been nice.

another infusion down


Is it possible

Nay, probable that because of my years of having MS that I have developed a downer attitude about this life? I'm seeing everything through pessimistic glasses.

I don't know. I'm so introverted and withdrawn, there isn't much on which to take measure. Perhaps it is a side effect of my pessimism, which (I hope, at least) would be a side effect of my MS.

It just feels like circular logic.


Yeah, I know.

The longer dosing interval is working great for me. Every eight weeks now. My neurologist recommended it when I said that Tysabri is working so well for me, I'd hate to go off it.

My take from the article is that every eight weeks is more effective and a lesser/no chance of PML. A win-win. Except for Biogen.

And you know what makes this study legit? The line at the bottom that said, "The current study had no commercial funding."


Ha Haaaaaaaaa

Oh, now I made myself sad : (

Best of luck with your lawsuit!


Candidate Clinton

Does your $250/mo limit on prescription drug costs include infusions received at hospital?

That would be awesome! Probably just another political move though.



I certainly hate being lumped in with the cancer patients for my infusion. I don't hate the cancer patients. I feel bad for them. At least they have hope of 'beating' their cancer. Alas, at this time, there is no known cure for MS. Which means I wouldn't have a cure for at least 10+ years. I prefer the medication be on the market for a long time. I'm already enough of a guinea pig with the Tysabri; it's working so very well though.

Anyways, back to being lumped in with the cancer patients.

It kind of sucks. The despair you can feel coming out of some of the infusion rooms. Death lingering in the hallways (but that could just be the whole hospital). On the plus side, the AIC staff probably think, "Oh good, we've got the MS guy who isn't looking bad at all* to treat for the next two-and-a-half hours." All why sitting there knowing I am DX:340. I know that it won't (shouldn't at least) kill me quick as a cancer. For that I am thankful. I am thankful there is a medication to halt/slow MS progression that is working (although in itself can maim/kill me). I am thankful that I have remained Relapse Remitting (RRMS). I am, OTOH, not thankful for: having invisible conditions, decreased mental and physical capacities no matter how slight. Needles, I freaking hate needles - bad disease to have if you hate needles. Dealing with people, I'm one of those just leave-me-alone guys. Having to deal with doctors, nurses, and even other patients just doesn't go along with me. But one endures. That is all I now know. You must proceed forward, no matter the outcome.

*And that's why they call it an invisible disease until you're fadged up. And I think the AIC staff knows better. And you see how all over the place this post was. My new reality.